Last Friday, Jenna woke-up at 6am throwing-up and a temp that was determined to rise. I took Jenna immediately off her tube feeds. 8am rolled around and now improvement. I called Jenna's Endocrinologist's emergency pager number to advise them I was giving Jenna her stress injection due to her high temp (103.2F). I have to call them each time in case they have further instructions.
Due to Jenna's last sickness (H1N1) and her response to her emergency injection, the doctor on-call advised me to immediately bring her in after giving her the injection. Poor Jenna was miserable :( Slept some, cried a lot, screamed a ton, and was just plain sad the rest of the time. I'm so thankful for the LPN who was helping with Jenna. He was able to get an IV started on Jenna on his first attempt! He is our hero!! Jenna is usually a very difficult stick. After a blood draw and a urine sample (via catheter), the specimens were sent to the lab for testing. Her chest x-ray showed that her hiatal hernia had returned. Most likely, the force of vomiting is to blame. The doctors said right off that she would be admitted. The hospital was slammed and full, so I was thankful they didn't consider her to be a candidate for returning home like they did so many others. What is the blessing in all of this? Jenna's glucose levels stayed in a normal range for 8 hours! After 8 hours, her levels were trending too close to the danger zone for her, so she was hooked-up to dextrose 5 and shortly after, we were in her room. Jenna had a horrible night of nausea and dry-heaves :( Finally (after another 8 hour wait), the nurse brought in nausea meds. They worked like a charm! Jenna was kept an additional day after her vomiting ended and for her lab results to come through. Sadly, her thyroid levels were down quite a bit, so her meds have increased. They also wanted to be sure she wouldn't come down with diarrhea. She was discharged Sunday afternoon and Monday morning she came down with the diarrhea. Ugh!! Thankfully, it only lasted half a day.
Since yesterday morning, Jenna has been off of her continuous tube feeding and we are experimenting with bolus (syringe) feeds! So far, so good :) We still hook her up at night so that we don't have to test her sugar through the night. What a rude awakening that would be!
We are seeing Jenna's GI doctor next week. Hopefully he can shed some light on the severity of the hernia. Pediatric surgery couldn't get Jenna in to be seen until much later in February. So frustrating! I asked if the surgery team would come talk to us prior to being discharged and we were told they would be coming by, but they didn't. No surprise there!
Joshua will be getting glasses next week :) Why the smiley face? He will be so adorable and he will be able to see straight. Bless his little heart...when one eye is dominant, the other turns in. I'm hoping this really changes Joshua's vision. If the glasses haven't improved his vision by our follow-up appointment in March, Joshua will have to have eye surgery :(
Jenna's eyes are fine at the moment. She may possible need glasses in the future due to her small optic nerves. We're so thankful we don't have to fight two kiddos to wear their glasses!!
Okay, so sorry for the grammar in this post. I'm just rambling, but wanted to jot everything down while it was still fresh on my mind. Blessings to all of you!!
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